Archive for 2015

2015

It’s been a busy year for us.  Following our ACE funded training project, the summer saw our co-curation of Normal? Festival of the Brain and Susanna performing Crackpot. Following this the piece was performed for NHS AGMS, and Patients Association Gold Standard event. In the Autumn, alongside our regular work, Susanna chaired sessions at the UK Dementia Congress, and…

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Normal? Festival of the Brain, 21st-24th May

The Festival of the Brain brings science and art together over four days to explore the brain. What happens when connections, chemicals and catastrophes send things off course, and is there such a thing as normal? Meet the archivists inside a brain, trying to keep dementia at bay whilst they sort through a lifetime of…

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Looking Back

“The meeting of two personalities is like the contact of two chemical substances: if there is any reaction, both are transformed.” Carl Jung If I am lucky enough to continue this work I have a feeling that each person I spend time with will stay with me. That each encounter will be vivid and will…

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Carers

I look forward to every day I spend in Westmead with C. and J., and I’m beyond exhausted every time I leave. By the time I get home I usually need an hour to not talk, not think, not do anything. The focus and patience invested suck out most of my energy. I visit C.…

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Almost goodbye

Our time at the care home is coming to an end. I introduced myself to A as always: ‘Lovely to see you A, I’m Shazea and we’ve been working together – I’ve been writing your words down and putting them in a book.’  When I took out the book to show her, with the photo…

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Tuning In

Putting the books together is a new challenge. I wrap the person around me, the rhythm, tone and meaning of their words eddy round me as I edit. I feel like a composer as I pick out the stories I have been told. P’s humour, M’s silences, B’s droplets of wisdom. I’m trying to get…

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30 minutes

Books have been printed. They arrive to the room in Westmead where we start our day, via Susanna’s suitcase, neatly packaged into a big, white box. I clutch C.’s book on my way to find her. There’s only half an hour before dinner – half an hour to share it; I worry our meeting will…

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The Books

A week spent creating the books that will belong to the wonderful people we have been working with at the care home. I’ve just finished my third book – such an intense experience. I’ve come at the project very much as a writer, gathering material to shape into art. There is an ambiguity in this…

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